The
Process Facilitator
The role of the Process Facilitator (PF) is crucial in ascertaining
the specific needs of people with disabilities and impairments.
This paper considers the role of the PF in relation to one
of the case studies from the CUSTODIAN project. The case
study is a female, in her sixties, who has suffered a lengthy
undiscovered viral infection which affected the brain leaving
her wheelchair bound, unable to communicate effectively,
ataxic and physically contracted. Through previous meetings
it had been determined that her mental faculties where not
hindered by the lengthy illness, and in many ways this had
added to the distress that she experiences arising from
her present condition.
The case study was released after the New Year (2000) and
now lives with her husband in a bungalow near the centre
of Dundee. Her husband moved in to the new accommodation
due to the condition of his wife and has not had a chance
to redecorate the premises. The case study is aware that
she is a ‘case study’ for the project and is happy that
she is able to obtain the technology, which could make
her life happier and more independent. As a consequence
of the predicament of the case study, the role of the
PF is central in determining the appropriate technology
to meet her needs as well as translating the technology
into user friendly language. Moreover, the PF in cases
such as this must act as an advocate for the case study
and mediate with the stakeholders of her behalf. The
Engineer utilised an ‘evolutionary’,
‘hit or miss’ approach to matching devices with need, wherein
through interaction with the client and supporting staff,
a determination of the minimum devices was developed.
From this the Client (the case study and her husband)
could determine for themselves what they considered was
appropriate. Having decided for themselves on the devices,
depending on finances, and whether the product was manufacturer
specific, the engineer would, in the future, return to
the house to install the devices .Accordingly, an unspoken
open-ended offer existed where the engineer would keep
returning to the house (possibly forever) until the client
was satisfied that they had all the required devices or
the financial ceiling had been attained. Through discussions
with the client, the engineer constantly pointed to the
endless things that Smart Home technology could do for
the clients, whilst avoiding specific such as what should
be done. At no point did he question the client concerning
their condition or make any attempt to gather data regarding
what difficulties the client might be experiencing.
Consequently
the client were left initially in a state of shock, being
completely flummoxed as to defining their technological
requirements. The engineer left a videocassette with them,
which was a PR video, outlining how to build Smart homes
for rich people.He did explain that a lot of what was
on the video was inappropriate to the clients’ needs,
possibly, but at no point tried to suggest appropriate
configurations of devices that might have been relevant.
Two observations and considerations are important to state:
Firstly, the engineer never asked the case study herself
what she wanted, or for that matter even engaged in eye
contact with her. Almost all interactions where between
him and the husband. Consequently, it is likely that the
husband will appropriate the decisions of the appropriate
devices to be installed to the house .Secondly, the husband
was determined by care professionals to be an individual
who was over-anxious and over attentive.
There
is a clear logistical problem with this type of ‘evolutionary’
design, in that the engineer is required to return on a
regular basis adding one or two devices at a time, could
mean that the process is never ending or that when the
client finally hits on an important device it is too late. ·There
appears to be little clear evaluation of the value of
the devices, within the remit of the engineer.His task
just appears to be to install them when required. There
is little doubt it might not be as simple as this in reality
and should devices be used that are later determined to
be inappropriate there is a strong possibility he might
return and remove them. ·Although the client is
two people (the case study and her husband), it is important
that the view of the person with disabilities is considered
equally to the person without. Effectively, if her wishes
are not sought and her needs not catered for the under
half the solution has been achieved. ·One of the
reasons why this case study was chosen initially was due
to the life circumstances that presented themselves. The
over-attentive husband needs not to be tied up from the
burden of responsibility, of caring for his wife, for
short periods of time, respite is essential.For this reason
the system is required to be installed to allow him to
feel confident to allow her to do her ‘own thing’. Moreover,
the case study needs to become more independent of her
husband. Her empowerment was central to the decision to
use her in the study. Through the ‘hit
or miss’ approach of the engineer, it is unclear how she
is to be empowered by the system. It appears that the
engineer is considering more the containment aspects that
can be perceived as being related to her disability. ·The
role of the PF is central in mediating between the care
sector and the engineering sector to eliminate many of
the above deficiencies. The PF is able to design a system
of appropriate devices that meet the needs of the client
and resource constraints .Through the use of a PF there
are a number of serious advantages which should be highlighted:
ØThe
PF can mediate in cases such as the case study above, to
determine the real needs of the user
ØThe
necessity of repeat visits by the engineer is minimised
two visits (prior to installation and installation itself).
ØThrough
the use of CUSTODIAN, the PF should be able to match the
technological solution to the user needs, in an appropriate,
resource-driven approach.
ØThrough
the use of CUSTODIAN, devices, which are essential and relevant
to the client, are unlikely to be overlooked, and devices
can be prioritised to reflect economic circumstances.
ØThe
PF can undertake checks and evaluations of the expediency
of the devices both pre and post installation, and mediate
with the care sector and engineer to obtain the optimum
design configuration for the client.
ØThe
PF save money all-round. Saving the purchaser of the equipment
money and time by defining the best solution and costing
it appropriately; and saving the installation company
money by relieving them of the necessity for repeated
home visits to the client and the time taken to design
an appropriate system.
ØThe
PF is also the insurance policy, not totally infallible
agreed, but through utilising the PF to undertake the design
specifications, all parties are likely to be consulted on
a number of occasions and any difficulties can be resolved
prior to installation of the equipment.
ØThe
PF releases valuable time from the purchasers and installers,
whilst allowing the views of all stakeholders to be reflected.
ØFinally,
the PF acts as a mediator between the opposing factions/stakeholders.
It
is apparent that any authority deciding to implement a number
of Smart Home schemes for adults with disabilities, that
there will be a number of differing factions/stakeholders
involved in the decision making process.As a non-partisan
individual the PF has the ability to liaise with anyone to sort potential problems and to enable
the development to continue: i.e. become a non-specific
product champion.