This is a
very brief summary of the paper that seems
to have caused a small stir in the disability
collective. I can understand why, but I also
think it is important that we in the UK look
at the social model of disability and put
in to the perspective that it deserves. The
full paper (not the final draft) is available
for download in the Articles section.
The origin
of the paper stems from a discussion that I
had with Dr Mark Rouncefield over a pint or
so. In this discussion we were ruminating about
the way that there is a constant tension between
medical practitioners and supports of the "social
model of disability". This discussion continued
through the use of second wave feminist tactics
adopted by some supporters of the model and
outmoded tactics by the medical profession.
Our discussion concluded that a paper was needed
and that a medical doctor is a preferable person
to have attend you when you are dying rather
than a PhD person. We also concluded that both
models informed the appropriate design of technology
to support people but both models hindered
the process by casting stereotypical notions
about people.
A Google search
of the "social model of disability" should
bring you enough sites to get an idea of the
distinction between the medical and social
models. But for those not willing to take this
challenge briefly, the social model considers
disability as a result of the barriers that
impede disabled and impaired people from accessing
traditional services and expectations. The
Medical model considers people in relation
to their medical condition and therefore attributes
a number of assumptions about the lifestyle
and practices of an individual based on this
medical evidence. The Social model uses a similar
tool to the second wave feminists who considered
everything as political and everything can
be considered in relation to women. The Social
model advocates tend to consider everything
in relation to the barriers that disabled people
are required to circumnavigate in their lives.
If pushed I
certainly do favour one of these views in preference
to the other, but the discussion that Mark
and I had revealed that when I design systems
for people with disabilities, I have to consider
the disability or impairment, but I also have
to consider a whole range of facets apart from
the medical and social barriers placed on a
person for whom I am designing. I really need
to understand how and what the person wants
from the technology, what their expectations
are, how the person lives and how the want
to live. Will the technology benefit the person
in the way they envisage? I need to know how
a person uses the spaces in their home and
how they want to use the spaces.
Therefore what
I do is take bit from both models but the main
element is looking at the person. This means
looking beyond the disability... Far beyond
the disability. Instead of concentrating on
what a person cannot do and why they cannot
do it, I concentrate on what they can do and
what they want to do, and design the technology
around their aspirations.
In the 'Anti-Social'
model paper we argue that the social model
has become a politically rhetorical argument
that polemicises disability, thereby focuses
attention on the 'disability' not on the person,
who might have an impairment. Just as the 'medical
model' is criticised for it's emphasis on viewing
people as depersonalised patients, we critique
the social model for viewing people from a
disability perspective. Through our work at
Lancaster University we have found that older
and disabled people's concerns might not be
their disability but rather more mundane concerns,
(how to take down and wash the curtains etc).
The social model misses these points which
are important when it comes to designing systems
to support people. The focus on disability
is a distraction to good design, as is the
focus on a medicalised condition.The focus
of good design should be the people who you
are design for. This means the people's concerns,
the way they live their life, their activities,
routines, who they are and what they want from
the final design are all important to effective
design.